Patients and families tied to potential mystery brain disease speak out about neurologist Dr. Marrero
I recently travelled to my hometown of Moncton, N.B., to report on a potentially mysterious brain disease that has people talking and very concerned.
I spent some time with Bonnie Vautour. Her mom Sylvia died this spring and had been part of a cluster of 48 diagnosed with an unknown neurological syndrome. Vautour remembered her mom as being a real spitfire, telling me, “She was so full of life, full of laughter and loved her grandkids. She played baseball almost her entire life and did a lot of stock car racing.”
Vautour’s mom had a rapid decline, initially showing signs of confusion and memory loss. In just months, she was referred to neurologist Dr. Alier Marrero, who included her in the “cluster.” I asked Vautour about Dr. Marrero and she said: “You couldn't ask for better bedside manners. Very, very friendly. Just super. You couldn't ask for a better neurologist.”
Over the course of our investigation, we spoke to many other patients and families about their experience with Dr. Marrero.
Carol Clark, who is 77 and living with the unknown syndrome, said “as far as I’m concerned, he's really my neurologist and will always be my neurologist.”
Steve Ellis, whose 64-year-old father Roger is a patient of Dr. Marrero. He says, “He recognized the trends, and he's the one that did the right thing.”
Staci whose stepdaughter, Gabrielle Cormier, is one of the youngest patients said, “It's really important that we speak for her and we let people know how appreciative she is of Dr. Marrero and his team.”
While patients and their families spoke highly of Dr. Marrero, the government has distanced themselves. Dr. Marrero was not included in briefings by the province on June 3 and again on Oct. 27.
This weeks’ briefing came as neuropathology reports tied to those who died in the cluster were made public.
W5 spoke exclusively to the neuropathologist who wrote those reports, Dr. Gerard Jansen. He told me “our work is to give a diagnosis with as much certainty as we can. And to also say what is not there if we don't find something .”
Dr. Jansen found that all of those he investigated died of normal brain diseases.
He wanted to express this to the families: “I'm not saying that people do not suffer or there is no disease. Absolutely not. These people, all of these eight people, had a disease. It is just that misclassifying them as having a new mysterious disease was not right.”
We asked Dr. Marrero if he had seen the reports and he said, “I have seen some results and would not like to comment on them. They were reviewing their autopsies; so I don't know exactly what is happening.”
For Vautour, she’s just hoping for some closure, and told us finally she expects to receive it this week from Dr. Marrero.
“Mum’s already passed, it’s been over five and a half months and we're just getting word of the autopsy results. To me, it was way too long. Way, way, way, way too long.”
CTVNews.ca Top Stories
CDC says it's identified 1st documented cases of HIV transmitted through cosmetic needles
Three women diagnosed with HIV after getting 'vampire facial' procedures at an unlicensed medical spa are believed to be the first documented cases of people contracting the virus through a cosmetic procedure using needles.
All London Drugs stores closed across Western Canada due to system issue
All 79 locations of pharmacy and retail chain London Drugs are shut down Sunday, and there is no estimate on when they will be back open.
Deadly six-vehicle crash on Highway 400 sparked by road rage incident
One person was killed in a six-vehicle crash on Highway 400 in Innisfil Friday evening.
Ontario to ban use of cellphones in school classrooms starting in September
Ontario is introducing a suite of measures that will crack down on cellphone use and vaping in schools.
Australian prime minister describes domestic violence as a 'national crisis' after protests
Australia's Prime Minister Anthony Albanese on Monday described domestic violence as a 'national crisis' after thousands rallied around the country against violence toward women.
Casey DeSmith won’t start Game 4 for the Canucks
Rookie goalie Arturs Silovs will start in net for the Vancouver Canucks when they face the Nashville Predators in Game 4 of their first-round playoff series Sunday.
Putin likely didn't order death of Russian opposition leader Navalny, U.S. official says
U.S. intelligence officials have determined that Russian President Vladimir Putin likely didn't order the death of imprisoned opposition leader Alexei Navalny in February, according to an official familiar with the determination.
Tornadoes kill 4 in Oklahoma, leaving trail of destruction and thousands without power
Tornadoes killed four people in Oklahoma and left thousands without power Sunday after a destructive outbreak of severe weather flattened buildings in the heart of one rural town.
Murder charge laid after man falls to death from Toronto apartment balcony
One person has been charged with second-degree murder in connection with the death of a man who fell from a balcony following an altercation inside a Toronto apartment building.
Local Spotlight
Haida Elder suing Catholic Church and priest, hopes for 'healing and reconciliation'
The lawyer for a residential school survivor leading a proposed class-action defamation lawsuit against the Catholic Church over residential schools says the court action is a last resort.
Kitchener family says their 10-year-old needs life-saving drug that cost $600,000
Raneem, 10, lives with a neurological condition and liver disease and needs Cholbam, a medication, for a longer and healthier life.
DonAir force takes over at Oilers playoff games
As if a 4-0 Edmonton Oilers lead in Game 1 of their playoff series with the Los Angeles Kings wasn't good enough, what was announced at Rogers Place during the next TV timeout nearly blew the roof off the downtown arena.
'It was instant karma': Viral video captures failed theft attempt in Nanaimo, B.C.
Mounties in Nanaimo, B.C., say two late-night revellers are lucky their allegedly drunken antics weren't reported to police after security cameras captured the men trying to steal a heavy sign from a downtown business.
Fergus, Ont. man feels nickel-and-dimed for $0.05 property tax bill
A property tax bill is perplexing a small townhouse community in Fergus, Ont.
Twins from Toronto were Canada's top two female finishers at this year's Boston Marathon
When identical twin sisters Kim and Michelle Krezonoski were invited to compete against some of the world’s most elite female runners at last week’s Boston Marathon, they were in disbelief.
Mystery surrounds giant custom Canucks jerseys worn by Lions Gate Bridge statues
The giant stone statues guarding the Lions Gate Bridge have been dressed in custom Vancouver Canucks jerseys as the NHL playoffs get underway.
'I'm committed': Oilers fan skips haircuts for 10 years waiting for Stanley Cup win
A local Oilers fan is hoping to see his team cut through the postseason, so he can cut his hair.
'It's not my father's body!' Wrong man sent home after death on family vacation in Cuba
A family from Laval, Que. is looking for answers... and their father's body. He died on vacation in Cuba and authorities sent someone else's body back to Canada.