Patients and families tied to potential mystery brain disease speak out about neurologist Dr. Marrero
I recently travelled to my hometown of Moncton, N.B., to report on a potentially mysterious brain disease that has people talking and very concerned.
I spent some time with Bonnie Vautour. Her mom Sylvia died this spring and had been part of a cluster of 48 diagnosed with an unknown neurological syndrome. Vautour remembered her mom as being a real spitfire, telling me, “She was so full of life, full of laughter and loved her grandkids. She played baseball almost her entire life and did a lot of stock car racing.”
Vautour’s mom had a rapid decline, initially showing signs of confusion and memory loss. In just months, she was referred to neurologist Dr. Alier Marrero, who included her in the “cluster.” I asked Vautour about Dr. Marrero and she said: “You couldn't ask for better bedside manners. Very, very friendly. Just super. You couldn't ask for a better neurologist.”
Over the course of our investigation, we spoke to many other patients and families about their experience with Dr. Marrero.
Carol Clark, who is 77 and living with the unknown syndrome, said “as far as I’m concerned, he's really my neurologist and will always be my neurologist.”
Steve Ellis, whose 64-year-old father Roger is a patient of Dr. Marrero. He says, “He recognized the trends, and he's the one that did the right thing.”
Staci whose stepdaughter, Gabrielle Cormier, is one of the youngest patients said, “It's really important that we speak for her and we let people know how appreciative she is of Dr. Marrero and his team.”
While patients and their families spoke highly of Dr. Marrero, the government has distanced themselves. Dr. Marrero was not included in briefings by the province on June 3 and again on Oct. 27.
This weeks’ briefing came as neuropathology reports tied to those who died in the cluster were made public.
W5 spoke exclusively to the neuropathologist who wrote those reports, Dr. Gerard Jansen. He told me “our work is to give a diagnosis with as much certainty as we can. And to also say what is not there if we don't find something .”
Dr. Jansen found that all of those he investigated died of normal brain diseases.
He wanted to express this to the families: “I'm not saying that people do not suffer or there is no disease. Absolutely not. These people, all of these eight people, had a disease. It is just that misclassifying them as having a new mysterious disease was not right.”
We asked Dr. Marrero if he had seen the reports and he said, “I have seen some results and would not like to comment on them. They were reviewing their autopsies; so I don't know exactly what is happening.”
For Vautour, she’s just hoping for some closure, and told us finally she expects to receive it this week from Dr. Marrero.
“Mum’s already passed, it’s been over five and a half months and we're just getting word of the autopsy results. To me, it was way too long. Way, way, way, way too long.”
CTVNews.ca Top Stories
Kidnapped by her father and kept in a crawl space: Court documents reveal Montreal horror story
A Montreal father who kidnapped his daughter who has autism and lied to police when they asked where she was should serve three years in prison, a Crown prosecutor said.
There's a new workers' rights treaty in Canada, but will it actually protect you?
Although a global workers' treaty has been in force in Canada since January, an employment lawyer believes it won't do anything more to protect employees from violence and harassment.
BREAKING Slovak interior minister says 'lone wolf' has been charged with shooting prime minister
The Slovak interior minister said Thursday that a 'lone wolf' has been charged in the shooting that seriously wounded Prime Minister Robert Fico.
B.C. man shot sex worker in the back during drug-fuelled birthday, court hears
A man from B.C.'s Lower Mainland has been sentenced to four years behind bars after shooting a sex worker in the back during a drug-fuelled 43rd birthday.
Protecting your car from the growing risk of keyless vehicle thefts
Auto technology has evolved and many newer cars use wireless key fobs and push-button starters instead of traditional metal keys. But that technology also makes things easier for thieves.
Shifting winds mean smokier skies in some parts of Canada, snow in other areas
Air quality warnings are still in place for some areas of Western Canada, according to the latest forecasts.
Mosque attack in northern Nigeria leaves 8 people dead. Police say the motive was a family dispute
At least eight worshippers were killed and 16 others injured early Wednesday morning after a man attacked a mosque with a locally made explosive in northern Nigeria's Kano state, resulting in a fire outbreak, the police said.
The Saskatchewan RCMP says it's safe to use your points at the McDonald's drive-thru
The Saskatchewan RCMP wants you to know it’s not targeting drive-thrus to ticket people for using their fast food reward apps.
DEVELOPING Latest updates on the major wildfires currently burning in Canada
Thousands of Canadians have been displaced as fires burn in Alberta, B.C. and Manitoba. Here are the latest updates.
Local Spotlight
B.C. musician's song catches attention of Canucks
When Adam Kirschner wrote 'Slap Shot,' he never imagined the song would be embraced by his favourite team.
'We're on standby': Team ready to help entangled right whale in Gulf of St. Lawrence
A team is ready to help an entangled North Atlantic right whale in the Gulf of St. Lawrence.
Thieves caught on camera stealing pet chicken from North Vancouver backyard
A $200 reward is being offered by a North Vancouver family for the safe return of their beloved chicken, Snowflake.
Adopted daughter in the Netherlands reunited with sister in Montreal and mother in Colombia, 40 years later
Two daughters and a mother were reunited online 40 years later thanks to a DNA kit and a Zoom connection despite living on three separate continents and speaking different languages.
'Reimagining Mother's Day': Toronto woman creates Motherless Day event after losing mom
Mother's Day can be a difficult occasion for those who have lost or are estranged from their mom.
Chris Hadfield inspires youth musical in Sudbury
YES Theatre Young Company opened its acclaimed kids’ show, One Small Step, at Sudbury Theatre Centre on Saturday.
Ottawa pizzeria places among top 20 deep-dish pizzas in the world at international competition
An Ottawa pizzeria is being recognized as one of the top 20 deep-dish pizzas in the world.
From outer space? Sask. farmers baffled after discovering strange wreckage in field
A family of fifth generation farmers from Ituna, Sask. are trying to find answers after discovering several strange objects lying on their land.
Wilfrid Laurier football player drafted despite only playing 27 games in his entire life
A Listowel, Ont. man, drafted by the Hamilton Tigercats last week, is also getting looks from the NFL, despite only playing 27 games of football in his life.