Patients and families tied to potential mystery brain disease speak out about neurologist Dr. Marrero
I recently travelled to my hometown of Moncton, N.B., to report on a potentially mysterious brain disease that has people talking and very concerned.
I spent some time with Bonnie Vautour. Her mom Sylvia died this spring and had been part of a cluster of 48 diagnosed with an unknown neurological syndrome. Vautour remembered her mom as being a real spitfire, telling me, “She was so full of life, full of laughter and loved her grandkids. She played baseball almost her entire life and did a lot of stock car racing.”
Vautour’s mom had a rapid decline, initially showing signs of confusion and memory loss. In just months, she was referred to neurologist Dr. Alier Marrero, who included her in the “cluster.” I asked Vautour about Dr. Marrero and she said: “You couldn't ask for better bedside manners. Very, very friendly. Just super. You couldn't ask for a better neurologist.”
Over the course of our investigation, we spoke to many other patients and families about their experience with Dr. Marrero.
Carol Clark, who is 77 and living with the unknown syndrome, said “as far as I’m concerned, he's really my neurologist and will always be my neurologist.”
Steve Ellis, whose 64-year-old father Roger is a patient of Dr. Marrero. He says, “He recognized the trends, and he's the one that did the right thing.”
Staci whose stepdaughter, Gabrielle Cormier, is one of the youngest patients said, “It's really important that we speak for her and we let people know how appreciative she is of Dr. Marrero and his team.”
While patients and their families spoke highly of Dr. Marrero, the government has distanced themselves. Dr. Marrero was not included in briefings by the province on June 3 and again on Oct. 27.
This weeks’ briefing came as neuropathology reports tied to those who died in the cluster were made public.
W5 spoke exclusively to the neuropathologist who wrote those reports, Dr. Gerard Jansen. He told me “our work is to give a diagnosis with as much certainty as we can. And to also say what is not there if we don't find something .”
Dr. Jansen found that all of those he investigated died of normal brain diseases.
He wanted to express this to the families: “I'm not saying that people do not suffer or there is no disease. Absolutely not. These people, all of these eight people, had a disease. It is just that misclassifying them as having a new mysterious disease was not right.”
We asked Dr. Marrero if he had seen the reports and he said, “I have seen some results and would not like to comment on them. They were reviewing their autopsies; so I don't know exactly what is happening.”
For Vautour, she’s just hoping for some closure, and told us finally she expects to receive it this week from Dr. Marrero.
“Mum’s already passed, it’s been over five and a half months and we're just getting word of the autopsy results. To me, it was way too long. Way, way, way, way too long.”
CTVNews.ca Top Stories
Signs of Alzheimer’s were everywhere. Then his brain improved
Blood biomarkers of telltale signs of early Alzheimer’s disease in the brain of his patient, 55-year-old entrepreneur Simon Nicholls, had all but disappeared in a mere 14 months.
VIA Rail service delayed for hours due to suspicious package investigation in Kingston, Ont.
VIA Rail service resumed in the Kingston, Ont. area late Saturday afternoon, after a suspicious package investigation halted train service for more than four hours over the Victoria Day long weekend.
$500K-worth of elvers seized at Toronto airport
Fishery and border service officers seized more than 100 kilograms of unauthorized elvers at the Toronto Pearson International Airport on Wednesday.
Box tree moths have infested Ontario and experts say more are coming. Here's what to do to protect your garden
An invasive moth species is on the rise in Canada and, if you've planted a certain shrub, it could stand to ruin your garden.
His SUV was stolen on Montreal's South Shore. Then he got a $156 parking ticket
A couple is frustrated after their SUV was stolen from Montreal's South Shore in March and they received a parking ticket for the same vehicle last week.
Banking mogul suing government after intelligence leaks leave him shut out of Canadian economy
Chinese Canadian banking mogul Shenglin Xian has launched a $300 million lawsuit against the federal government. It’s a means to find the source of intelligence leaks which Xian says has cost him his livelihood.
Conservatives, NDP should be 'celebrating' EV deals: industry minister
Industry Minister François-Philippe Champagne says federal opposition parties should be 'celebrating' the recently announced electric vehicle deals, despite their criticisms the Liberals refuse to make public the terms and conditions laid out in the contracts.
Jesus is their saviour, Trump is their candidate. Ex-president's backers say he shares faith, values
As Donald Trump increasingly infuses his campaign with Christian trappings while coasting to a third Republican presidential nomination, his support is as strong as ever among evangelicals and other conservative Christians.
Woman with liver failure rejected for a transplant after medical review highlights alcohol use
For nearly three months, Amanda Huska has been in an Ontario hospital, part of it on life support, because of severe liver failure. Her history of alcohol use is getting in the way of her only potential treatment: a liver transplant.
Local Spotlight
'Another pair of eyes watching over me:' How a B.C. woman's service dog saved her from drowning
A B.C. woman says her service dog pulled her from a lake moments before she had a seizure, saving her life.
Starbucks fan on decades-long journey to visit every store in the world
A Starbucks fan — whose name is Winter — is visiting Canada on a purposeful journey that began with a random idea at one of the coffee chain's stores in Texas.
'Sacred work': Sask. First Nation learning how to conduct its own underground searches
Members of Piapot First Nation, students from the University of Winnipeg and various other professionals are learning new techniques that will hopefully be used for ground searches of potential unmarked grave sites in the future.
'It could mean a cure': Cautious optimism for groundbreaking ALS research at Western
ALS patient Mathew Brown said he’s hopeful for future ALS patients after news this week of research at Western University of a potential cure for ALS.
B.C. musician's song catches attention of Canucks
When Adam Kirschner wrote 'Slap Shot,' he never imagined the song would be embraced by his favourite team.
'We're on standby': Team ready to help entangled right whale in Gulf of St. Lawrence
A team is ready to help an entangled North Atlantic right whale in the Gulf of St. Lawrence.
Thieves caught on camera stealing pet chicken from North Vancouver backyard
A $200 reward is being offered by a North Vancouver family for the safe return of their beloved chicken, Snowflake.
Adopted daughter in the Netherlands reunited with sister in Montreal and mother in Colombia, 40 years later
Two daughters and a mother were reunited online 40 years later thanks to a DNA kit and a Zoom connection despite living on three separate continents and speaking different languages.
'Reimagining Mother's Day': Toronto woman creates Motherless Day event after losing mom
Mother's Day can be a difficult occasion for those who have lost or are estranged from their mom.