Kitchener family says their 10-year-old needs life-saving drug that cost $600,000
Raneem, 10, lives with a neurological condition and liver disease and needs Cholbam, a medication, for a longer and healthier life.
While eclipse watchers look to the skies, people who are blind or visually impaired will be able to hear and feel the celestial event.
Sound and touch devices will be available at public gatherings on April 8, when a total solar eclipse crosses North America, the moon blotting out the sun for a few minutes.
"Eclipses are very beautiful things, and everyone should be able to experience it once in their lifetime," said Yuki Hatch, a high school senior in Austin, Texas.
Hatch is a visually impaired student and a space enthusiast who hopes to one day become a computer scientist for NASA. On eclipse day, she and her classmates at the Texas School for the Blind and Visually Impaired plan to sit outside in the school's grassy quad and listen to a small device called a LightSound box that translates changing light into sounds.
When the sun is bright, there will be high, delicate flute notes. As the moon begins to cover the sun, the mid-range notes are those of a clarinet. Darkness is rendered by a low clicking sound.
"I'm looking forward to being able to actually hear the eclipse instead of seeing it," said Hatch.
The LightSound device is the result of a collaboration between Wanda Diaz-Merced, an astronomer who is blind, and Harvard astronomer Allyson Bieryla. Diaz-Merced regularly translates her data into audio to analyze patterns for her research.
A prototype was first used during the 2017 total solar eclipse that crossed the U.S., and the handheld device has been used at other eclipses.
This year, they are working with other institutions with the goal of distributing at least 750 devices to locations hosting eclipse events in Mexico, the U.S., and Canada. They held workshops at universities and museums to construct the devices, and provide DIY instructions on the group's website.
"The sky belongs to everyone. And if this event is available to the rest of the world, it has to be available for the blind, too," said Diaz-Merced. "I want students to be able to hear the eclipse, to hear the stars."
The Perkins Library -- associated with the Perkins School for the Blind in Watertown, Massachusetts -- plans to broadcast the changing tones of the LightSound device over Zoom for members to listen online and by telephone, said outreach manager Erin Fragola.
In addition to students, many of the library's senior patrons have age-related vision loss, he said.
"We try to find ways to make things more accessible for everyone," he said.
Others will experience the solar event through the sense of touch, with the Cadence tablet from Indiana's Tactile Engineering. The tablet is about the size of a cellphone with rows of dots that pop up and down. It can be used for a variety of purposes: reading Braille, feeling graphics and movie clips, playing video games.
For the eclipse, "A student can put their hand over the device and feel the moon slowly move over the sun," said Tactile Engineering's Wunji Lau.
The Indiana School for the Blind and Visually Impaired started incorporating the tablet into its curriculum last year. Some of the school's students experienced last October's "ring of fire" eclipse with the tablet.
Sophomore Jazmine Nelson is looking forward to joining the crowd expected at NASA's big eclipse-watching event at the Indianapolis Motor Speedway, where the tablet will be available.
With the tablet, "You can feel like you're a part of something," she said.
Added her classmate Minerva Pineda-Allen, a junior. "This is a very rare opportunity, I might not get this opportunity again."
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Raneem, 10, lives with a neurological condition and liver disease and needs Cholbam, a medication, for a longer and healthier life.
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