'It's insane': Ont. patient told she'd have to wait 4.5 years to see neurologist
An Ontario doctor says health-care wait times have reached “insane” lengths in the province, as one of her patients faces a 4.5-year wait to see a neurologist.
When Dr. Joy Hataley, a family practice anesthetist in Kingston, Ont., recently tried to send a patient to a neurologist at the Kingston General Hospital, she received a letter from the specialist’s office telling her that the current wait time for new patient referrals is 4.5 years.
The letter said that, if the delay is “unacceptable” to Dr. Hataley, she should instead refer the patient to a neurologist in Ottawa or Toronto.
Dr. Hataley, who has been outspoken about wait times and other issues plaguing Ontario’s health care system, said the wait time “shocked” her.
She wanted to shock others as well, so she tweeted a photo of the letter and tagged Ontario Health Minister Eric Hoskins and Kingston-area MPP Sophie Kiwala.
Dr. Hataley said she’s used to hearing back from specialists who are unable to see her patients for months, and even up to 2.5 years. But a 4.5-year wait is “insane,” she told CTVNews.ca in a telephone interview.
“This is an alarm bell,” she said. “What it is to me is a red flag to the system.”
Dr. Hataley’s patient, Suzan Wooldridge, said that although her case is not urgent, having to wait 4.5 years to see a neurologist is “just wrong.”
“When Dr. Hataley first pulled up the response from the referral, both of us were just seeing the wait time first hand, I was just in disbelief and shocked,” Wooldridge, a 40-year-old developmental service worker, told CTVNews.ca in an email. “The more I thought about it after leaving her office I was just annoyed and felt that this is ridiculous and not in any way okay.”
Wooldridge said she will continue to live with chronic pain and be cared for by Dr. Hataley until she can see a neurologist. She said she shouldn't have to travel outside of Kingston to see a specialist.
“I don’t honestly feel that I should have to go to another city when we have a neurologist 4.5 minutes up the road and I’m a resident of the city in which my taxes help go towards,” she wrote. “I don’t think it’s right or fair to drive to another city…it’s financially not easy for me to just pick up and go, as much as I would like to.”
Dr. Hataley said travelling for health care can come at a considerable cost to a patient, and many people are unable to make such trips.
Dr. Hataley said wait times to see neurologists in Kingston are notoriously bad. But she said the problem is not confined to a particular neurologist or even that field of medicine.
In her nearly 20 years of experience working in family practice, operating rooms and emergency rooms, she has had countless discussions and meetings with government officials and other health care providers about wait times. And they all seem to be going nowhere, she said.
“We’ve hit the wall,” Dr. Hataley said. “My main message is: we need timely, consistent and reliable health care in our province and we do not have it.”
Dr. Michael Fitzpatrick, chief of staff and vice-president of medical affairs at the Kingston Health Sciences Centre, said lengthy wait times are “a challenge that is well known at all levels of our system.”
In a statement to CTVNews.ca, Dr. Fitzpatrick said hospital officials are working to address the problem, and noted that urgent cases are always prioritized.
He said wait times vary across medical specialties and even within specific fields, such the neurology sub-speciality of movement disorders, where Dr. Hataley’s patient was referred.
Dr. Fitzpatrick said that only a small number of specialists in Ontario treat patients with movement disorders.
“We are the only clinic of our kind located between Toronto and Ottawa, and often receive referrals from a very large catchment area,” he said. “We have just recently recruited a new physician, which we believe will improve wait-times and we hope to do more recruitment soon.”
Ontario Medical Association President Dr. Shawn Whatley said it’s “deeply concerning” to see wait times like the one Dr. Hataley highlighted.
He said the OMA has been raising the alarm about long wait times for all kinds of health care services for years. In his own small-town practice, Dr. Whatley said it’s usually a two-year wait for patients who need joint replacements, for example.
“This is unacceptable,” he told CTVNews.ca. “I think we need to take this seriously, and we need to start fixing it.”
When patients have to travel outside of their towns and cities for medical procedures, “it’s a huge burden on the patient, huge burden on the family,” Dr. Whatley said.
And medical literature shows that, despite Canada’s universal health care system, long wait times disproportionately affect low-income Canadians because they don’t have the financial means to travel, he added.
“We have lost the moral high ground in saying that all of our patients have access (to care) regardless of need,” Dr. Whatley said. “It’s just not true.”
Dr. Hataley said the health care system is still “really good” at emergency care. But, while an “overwhelming” amount of health-care dollars goes to front-line care, there aren’t enough resources devoted to ensure patients who develop new or chronic illnesses are seen by specialists in a timely manner.
“We talk about (wait times) ad nauseam. We’re in trouble, we all know it. Now let’s get to work,” she said.
Dr. Hataley said improving the relationship between the provincial government and health care providers should be one of the first steps in addressing the wait-time crisis.
The Ontario Ministry of Health did not respond to CTVNews.ca’s questions about wait times by publication time, but the provincial government tracks and publicly displays wait times for certain types of surgeries and medical procedures, including hip and knee replacements and cancer surgeries.
According to a 2016 Commonwealth Fund survey of people in 11 developed countries, Canadians reported the longest wait times to see specialists. Fifty-six per cent of Canadians surveyed said they waited longer than four weeks to see a specialist, compared with the international average of 36 per cent.
The same report found that less than half of Canadians could get a same or next-day appointment with their family doctor, and only one in three had access to after-hours medical care.
Earlier this year, the Healthcare Access and Quality Index published in The Lancet medical journal placed Canada 17th when it comes to death rates from diseases that are normally considered treatable.